We the scientists: how a daring team of parents and doctors forged a new path for medicine

di Amy Dockser Marcus

2023 · 222 pagine · Riverhead Books · ISBN 9780399576133

Trama

Parents whose children had been diagnosed with the rare and fatal genetic condition Niemann-Pick Type C disease recognized there would never be a treatment in time to save their children if things stayed the same, so the parents set up a collaboration with researchers and doctors in search of a cure.

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